lab results

i had a doctor’s appt this week & i knew it wasn’t going to be good – but i never imagined it would be as bad as it was.  when i walked in my doc said ’so you’ve stopped taking the meds?’.  um, nope, been taking as directed.

my labs are worse now than when i was first diagnosed. so bad that i’m now not getting enough oxygen in my red blood cells.
T4 69

T3 21.4

TSH .01

so now i’m taking  20mg of neomercazole a day and next blood test is in 4 weeks.  iron should help the oxygen/blood thing. and while i didn’t discuss it w the doc, i’m going to start taking some calcium.

i’m not shakey like i was @ diagnosis – i just need to move constantly.  i’m a little itchy.  and tired a lot.

argh!!!!!!!!!!!!!!  fuck fuck fuck

herbal meds

in my last post, i mentioned i started taking some herbal meds.     you’re supposed to take them 2x a day but i kept forgetting to take it so would end up with 1x a day.  that’s when i decided i’d take the whole dosage in one shot.   probably did that for 5 days in a row.   and then started to break out.

and breakout in a massive way.  not my face too much but my neck, chest, shoulders, back.  so badly that i couldnt wear a v neck shirt.  so badly that i thought about wearing a turtleneck even though it was high 30s/ high 80s (i decided not to).     then i got my period almost 2 wks early.   and then i started having really nasty stinky farts.

so i stopped taking it

my natropath  informed me it’s actually 5x a day u should take it but the 2x is for convenience.  i shouldn’t have been taking it all at once.    i havent taken it for a week now.  figured i’d let my body chill out & hope the zits go away before trying it again.   they’re going away slowly.

how i feel update

found a new site tonite that looks pretty good and seems to have an active community – thyroid support centre

i have another week until i get my blood drawn & already have a doc appt for the end of january. it will be very interesting to see how things are going. i’m feeling pretty decent – energetic, brain seems to be working better, libido is even starting to return. probably most settling is my heart rate. it doesn’t feel like it’s racing all the time.

i am getting the occasional hyper symptom. every once & again my hands will feel shakey. and the weird itching appears that i had years ago when first diagnosed (prior to diagnosis, i was frequently itchy everywhere but at some point that stopped. thru out the graves, only 1 place was consistently itchy – my right nipple -WTF?!?!?!).

while i’m very good at remembering to take my thyroid meds, i’m not so great at remembering to take the other vitamins & such i want to take. i’m trying to take cQ10 as i’ve heard good things about it – especially for the gums. am also trying to remember to take iron (ferroous sulfate).

tonite i’m going to start some herbs to help with the brain fog, liver detox & bloating as i’m wondering how much of my tummy is graves fat vs bloat. i’m taking ginko biloba (good for blood flow, free radicals & clotting. mixed research on memory assistance), milk thistle for the liver and avena sativa which seems to assist with the detox, increase energy & help with the libido (btw, this is oats. yes, just oats).

10mg for 3 weeks

i’ve been on 10mg for a day short of 3 weeks now.  i think my heart has chilled out a little bit but not entirely.  when i go to bed at nite it seems to be beating pretty fast.   tomorrow i drop down to 5mg.   i wonder if the drug has done much of anything.  not due for another blood test for another 3 weeks or so but would love to get one to see if anything has changed in 3 wks – doubtful – i think it takes 5 to work thru ur blood system.

no remission

having had normal tsh/t3/t4 numbers for quite some time (14 months), i went off my 5mg of neomercazole the end of september. when i had my levels tested 5 weeks later, i was almost as bad as when first diagnosed (numbers below).

which sucks. now at 7 weeks off meds, i was feeling better – like my old self before graves. my doctor suggested maybe i like being hyper.

yeah- i do! i like the energy, i like the metabolism – and i had that all before i had graves so why can’t i now???

although i don’t like the heart palpitations i’ve been having. so i’ve just started taking 10mg neomercazole to get me back into ‘normal’ again.

	t4	t3	tsh
july 05	44	14	.05
nov 07	33	11	.02

welcome

i’ve updated the about page to give a bit of background about me & why this blog exists.